A Life of Dignity and Worth

by Audrey King

During the year 2005 I interviewed Sheila Keogh (nee Essex) as part of a Government of Canada Centennial Flame research project that involved exploring the lives of Canadians with disabilities who have significantly contributed to public life. The following is an account of the dignity and worth of Sheila’s life, as she shared it with me and allowed me the privilege of sharing her life with others.

A Life of Dignity and Worth

A Life of Dignity and Worth plain text

Neo-Asylum Era: Institutions Without Walls

by Sandra Carpenter

I spent the first 20 years of my life fighting to get out of an institution, only to spend the rest of it keeping the institution from descending upon me. What I mean by that is that the Local Health Integration Network (LHIN) system will connect, coordinate and plan all health service delivery within their area. It is indeed an institution without walls and I will be in the middle of it, and unless Direct Funding (DF) stays outside the LHIN system, I will be controlled by it and accountable to it. And while that might not be bad for the individual who wants to speed up access to treatment, and for whom the time with LHIN intersection is limited, my concern remains for people –like me – who will be intersecting with a LHIN for daily, essential support.

Neo-Asylum Era – Institutions Without Walls

Neo-Asylum Era – Institutions Without Walls plain-text

Summer Safety Tips To Beat The Heat

This issue includes a special feature which provides us with tips to staying cool in the summer heat. For detailed information click on the links below.

Summer Safety Tips to Beat the Heat

Summer Safety Tips to Beat the Heat plain-text

Docs Knows Best: It’ll be too late for you, if he’s wrong

This is an article on ‘futile-care theory’ by Wesley J. Smith. For full story, please click the links below.

Doc Knows Best

Doc Knows Best plain-text

Building an Inclusive and Accessible Canada: Supporting People with Disabilities

In this article, the Council of Canadians with Disabilities (CCD) is calling upon the Federal Government to build an inclusive and accessible Canada, where people with disabilities benefit from Canadian society in ways equal to other Canadians.

Building an Inclusive and Accessible Canada

Building an Inclusive and Accessible Canada plain-text

Disabled Killed in N. Korea: Defector

by Jack Kim, Reuters News Agency, in Toronto Star, March 23, 2006

“SOUL—North Korea has no people with physical disabilities because they are killed almost as soon as they are born, a physician who defected from the communist state said yesterday…….”  For full story, click the link below.

Disabled Killed in N. Korea – Defector

Disabled killed in N. Korea – Defector plain-text

Open Letter: Regulation of self-directed attendant services

The Health Professions Regulatory Advisory Council (HPRAC) has been asked to give advice on the fact that PSWs (personal support workers) are unregulated. HPRAC is to report on whether some sort of certification is in order for PSWs. The problem is that the term ‘PSW’ encompasses all sorts of occupations, including attendant services. Regulation/certification of self-directed attendants is regarded by most consumers as a potential disaster and an intrusion into our ability to direct our own lives. What follows is one of the best letters CILT has seen on this subject.

Open Letter

Open letter plain-text

Open Letter

This open letter submitted by Council Of Canadians With Disabilities is regarding Disability Community response to CBC interview with Robert Latimer.

Open Letter CCD

Open Letter CCD plain-text

The Value of Life With A Disability

Most of society sees people with disabilities as persons who are flawed, pitiful and without dignity. But we see ourselves as a vital and proud community, with values of our own that enhance our quality of life, values that could enhance life for all:

1) tolerance for others’ differences (racial, intellectual, financial/class)

2) matter-of-fact orientation toward helping; acceptance of human interdependence over rugged individualism

3) high tolerance for lack of resolution, living with unknowns or less-than-ideal outcomes

4) characteristic dark humor, laughing at the oppressor, finding humor in almost any aspect of life

5) highly developed skills at managing multiple problems, systems, and helpers

6) creativity, lack of rigidity, ability to use traditional elements in new ways to solve problems

7) sophisticated future orientation; planning around anticipated obstacles

8) ability to read others’ attitudes; skill at filling in the gaps and sorting out contradictory messages

Independent Living and the Medical Model of Disability

In this article, author Simon Brisenden discusses in Independent Living Movement and the public’s misconception of the need for a medical model when dealing with consumers.

IL and the Medical Model of Disability

IL and the Medical Model of Disability plain-text

The Real Facts About Disability and “Quality of Life”

If only Kevorkian and others would read the research literature before deciding it is reasonable to want to die when you have an extensive disability!

The Real Facts about Disability and ‘Quality of Life’

The Real Facts about Disability and ‘Quality of Life’ plain-text

Bioethics: Introduction to Theories from Hell

In this article, author Alice Mailhot discusses the effect bioethicists have had on the medical system in the past 20 years.

Bioethics – Introduction to theories from hell

Bioethics – Introduction to theories from hell plain-text

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