What is self-direction?
- Understand their support service requirements
- Understand what activities or procedures are necessary in meeting their service needs
- Provide instructions to an attendant on how to carry out these activities or procedures
A family member or designated person (by consumer) may provide interpretation of the consumer’s instructions but cannot direct the attendant on the behalf of the consumer.
What is the waiting time to receive attendant services?
How is confidentiality maintained?
How to get more information about the attendant Service providers listed in the ASAC Application?
- Access Independent Living Services – www.accessils.ca
- Bellwoods Centres for Community Living – www.bellwoodscentres.org
- Gage Transition to Independent Living – www.westpark.org/Services/GTIL.aspx
- North Yorkers for Disabled Persons – www.northyorkersfordisabledpersons.ca
- Nucleus Independent Living – www.nucleusonline.ca
- March of Dimes Canada – www.marchofdimes.ca
- NABORS (Neighbours Allied for Better Opportunities in Residential Support) – www.nabors.ca
- PACE Independent Living – www.pace-il.ca
- Participation House Markham – www.participationhouse.net
- Spinal Cord Injury Ontario – www.sciontario.org
- Vibrant Healthcare Alliance – www.vibranthealthcare.ca (formerly Anne Johnston Health Station – Tobias House Attendant Care)
How can consumers prepare for an interview?
- His/her own individual needs in detail;
- His/her ability to direct own services
- His/her insurance arrangements;
- His/her individual financial situation, if a subsidy or rent-geared-to-income assistance is required;
- His/her activities and interests; and
- All information included in the application.
Consumers can also prepare for the interview by making a list of questions about living in that project or receiving outreach attendant services. The following sample questions may help individuals create their own lists of questions:
- What services are available?
- How does the consumer arrange for staff and attendants to assist?
- How are attendants trained?
- What involvement will consumers have in hiring, training and appraising the performance of attendants?
- Will the same person provide attendant services all the time, or will the consumer work with a number of attendants?
- Will attendants assist with shopping or banking, or provide services at school or at work?
- If friends who are disabled visit, will the staff assist them also?
- If a consumer encounters any problems in a relationship with an attendant, is there a resolution/complaint procedure in place?
- Are attendants unionized or non-unionized? Will membership or non-membership in a union have an impact on how services are provided?
- For apartment projects: How many units have one, two or three bedrooms? Can a unit be viewed in advance?
- For shared living situations: Are private bedrooms available? How many people would share facilities? Can the individual bring his/her own furniture?
- For transitional programs: How long is the average stay?
- Is the accommodation furnished or unfurnished?
- Will there be a lease to sign?
- What does the subsidized rent include? For example, does it include heat, hydro, appliances, cable TV, and parking?
- What parking is available for cars and vans?
- Where is the nearest grocery store, drugstore, bank, library, accessible restaurant or movie theatre?
- Are there rules about pets, visitors or parties, etc.?
- How old is the building?
- Are there balconies?
What are service contracts/plans of service and leases?
The service contract or the plan of service is an agreement between the consumer and the service provider outlining the services offered by the agency and the conditions under which these services are continued or terminated. The service plan may also include a list of permanent services and the time required to perform those services. An annual review process may be included. The service contract/service plan is signed by both parties, the consumer and the service provider.
The lease is a standard tenant/landlord agreement outlining the conditions of tenancy. Usually the attendant services provider and the landlord are two completely separate entities.
How can consumers prepare to move?
- How will the consumer make moving arrangements?
- Is apartment insurance necessary? If so, how much will it cost?
- What drugs, specialized supplies and equipment/tools/assistive devices will be needed?
- How much will it cost to buy or rent equipment/tools or assistive devices? How will maintenance be covered if equipment or devices require repairs?
- What government assistance programs are available to cover all or a portion of the cost of assistive devices and equipment?
- What cleaning supplies are needed?
- What is the cost of specialized telephone equipment?
- What commonly used kitchen items are needed?
- Should the consumer obtain a change-of-address form from the Post Office?
What key skills will consumers require to self-direct?
- Knowing his/her individual needs;
- Knowing the time required for assistance;
- Being able to explain, step by step, how assistance is to be given;
- Having all supplies on hand;
- Being organized; and
- Using time efficiently.
How can consumers successfully resolve day-to-day problems with attendants?
A consumer should:
- Not be afraid to say how this particular problem has made him/her feel;
- Deal with only one or two issues at a time;
- Be prepared to have a possible solution to the problem in mind; and
- Be prepared to listen to the attendant’s point of view and welcome feedback.
Many experienced consumers of attendant services have observed that if problems are resolved as they occur, relations with attendants will be more positive. It is essential to remember that as the person who is directing services, the consumer has primary responsibility for addressing issues.
It is important not to overreact and threaten to go to management (the service provider) without first discussing the issue with the attendant. This may only make matters worse, lead to resentment and sour the relationship between the individual and the attendant.
Going to management: If the consumer is unable to resolve the problems with an attendant, then s/he could choose to bring the matter to the attention of management (the service provider).
It may be helpful for the consumer to:
- Write down specific concerns, with dates when events occurred;
- Inform the attendant that management has been notified; and
- Have both him/herself and the attendant present at the meeting with management.
Service providers do have procedures in place to resolve problems between consumers and attendants and other program staff. Service providers believe that it is part of their responsibility to assist in successfully resolving interpersonal differences between consumers and attendants.
What can consumers do if they believe that abuse is taking place?
It is an unhappy and unwelcome reality of modern life that some people in our society experience an abusive relationship with a caregiver. Although abuse, unfortunately, can occur to anyone, people with disabilities, women and seniors are more vulnerable. Abuse can take the form of verbal, physical, financial or sexual abuse.
If a consumer believes that s/he is being abused by an attendant, there are a number of positive steps that can be taken to resolve the situation. First, consumers should be aware that service providers take a complaint of abuse very seriously and that they do have policies and procedures in place to resolve complaints, including complaints of abuse.
Initially, however, consumers are advised to talk to someone whom they trust: to discuss feelings; to determine what has happened or is happening in order to decide whether abuse is taking place or not; and to discuss options for resolving the situation. Consumers can consult attendant services project or program staff, a staff person at their local ILRC, a trusted family member, a friend, a minister, a doctor or a local crisis centre helpline.
What can consumers expect in their relationships with attendants?
First, attendant services are “self-directed.” This means that consumers need to know:
- What the individual wants the attendant to do;
- When the individual wants tasks performed; and
- How s/he wishes tasks to be performed.
All of these activities are part of the training process. (Self-direction does not mean, however, that the consumer should follow the attendant around his/her home and monitor each step of every activity.)
Second, attendant services involve “physical assistance” with “routine activities of daily living” due to “physical limitations“.
This includes assistance with those activities of daily living which the consumer would do for himself/herself with his/her own hands, arms, and legs. This, therefore, would include assistance with:
- Bowel and bladder routines, etc.
Accordingly, in a relationship between an attendant and the consumer, it is the consumer who is in control and who takes responsibility for decisions, and it is the attendant who is responsible for carrying out these instructions. If the consumer relinquishes responsibility for making decisions, then the consumer is asking the attendant to provide “care,” rather than to provide “services.”
Training: It is the consumer who takes responsibility for training attendants. Training includes knowing how things are to be done, so that each attendant with whom the consumer works gets to know individual routines.
Even if there is a veteran attendant or a project staff person present who knows daily routines, it is usually the consumer who manages the training process. Under this management, an experienced attendant can demonstrate activities while the new attendant observes and learns the routines.
There may be some situations in which a consumer is not able to take full responsibility for decision making and training. For example, a person who is newly disabled and who is participating in a transitional living program would be learning how to self-direct his/her own services. Clearly, it takes skill and experience to self-direct.
A relationship between a consumer and an attendant involves a positive interaction in which both parties benefit. The person with a disability receives physical assistance to live independently and the attendant receives job satisfaction and a salary.
It may also be helpful to note that consumers and attendants are participating in a professional work relationship. As a consumer of attendant services, the individual with a disability may develop a friendly relationship with a number of attendants with whom s/he interacts on a daily basis. However, it is not the responsibility of the attendant, and it is not fair to expect an attendant, to provide emotional support or to take the place of friends and family members.
There is a delicate balance which has to be struck between the consumer and the attendant, especially as many of the activities performed are of a personal nature and take place largely in the consumer’s home. Yet the consumer and the attendant are participating in a work relationship. If both consumer and attendant can treat each other with mutual respect and dignity, then this delicate balance can be achieved with satisfaction on both sides.
How can consumers and attendants work together in a positive and productive way?
- Consumers and attendants should remember that both are human beings, and deserving of dignity and respect.
- Consumers should treat attendants with the courtesy and decency with which they would like to be treated themselves.
- Consumers should learn about what it means to self-direct, and benefit from the knowledge of more experienced consumers and veteran attendants.
- Consumers benefit from learning about their rights and responsibilities and the rights and responsibilities of attendants and service providers.
- Consumers can practise good time management and be organized by planning the activities to be done by an attendant ahead of time, making a list if necessary.
- Consumers should remember that attendants have several job responsibilities and that a number of consumers are sharing their services.
- Consumers should give feedback on how services are performed, and be willing to listen and learn from the feedback of experienced attendants.
- Individuals should respect the confidentiality of personal information shared between a consumer and an attendant. Many housing projects are small communities where news travels quickly.
- Consumers and attendants should always keep the doors of communication open.